January 10, 2015
The liver doctor called yesterday to review the
team plan. They are suspicious of the blood vessels and immune system...they
also want the panel of blood clotting disorders to be run. Patrick's liver
function/ enzymes are good and not to blame for his health issues. They
want to review his liver biopsy slides and want a repeat ultrasound.
Patrick will continue to need multiple endoscopes/bandings as this is the right therapy to prevent a serious bleed. He said the ultrasound will need to be done for consideration of either the Rex shunt or splenorenal shunt. He, in their evaluation, is a candidate but need to have those scans to see which direction they feel will be best for Patrick
Patrick will continue to need multiple endoscopes/bandings as this is the right therapy to prevent a serious bleed. He said the ultrasound will need to be done for consideration of either the Rex shunt or splenorenal shunt. He, in their evaluation, is a candidate but need to have those scans to see which direction they feel will be best for Patrick
They kept saying
they need to do what is best for Patrick and that his condition is very
complicated which made me feel better that we didn't waste anyone's time.
They really are focusing on the why for the portal hypertension and why was their a clot and what to do with it. The 3 other liver doctors felt it was not moving and would just stay there but this team has done research of the side effects of the portal vein clot. Even though Patrick's body has made the collateral vessels to help the blood flow around the blocked vein he can begin having bile duct problems and/ or growth development and cognitive issues.
So thankful for our Charleston doctor not giving up on Patrick and passing everything off and pushing us to get where we needed to be.
Thank you for all your vigilant prayers to open the doors of where we need to be and giving us the strength to keep going. And most importantly praying for Patrick ... In a sometimes scary place letting Patrick meet some really cool other kids and staff who make things a whole lot less scary.
They really are focusing on the why for the portal hypertension and why was their a clot and what to do with it. The 3 other liver doctors felt it was not moving and would just stay there but this team has done research of the side effects of the portal vein clot. Even though Patrick's body has made the collateral vessels to help the blood flow around the blocked vein he can begin having bile duct problems and/ or growth development and cognitive issues.
So thankful for our Charleston doctor not giving up on Patrick and passing everything off and pushing us to get where we needed to be.
Thank you for all your vigilant prayers to open the doors of where we need to be and giving us the strength to keep going. And most importantly praying for Patrick ... In a sometimes scary place letting Patrick meet some really cool other kids and staff who make things a whole lot less scary.
No comments:
Post a Comment