October 13, 2014
We
went to hematology/oncology today and his blood counts were low but normal for
him...based on the counts he feels that Patrick's body is healing well after
his surgery. The doctor was a bit more concerned about the confirmation of factor 5
leiden. Not many children are tested for this as it is rare for children to have factor 5. He does want to run a bigger panel of blood clotting disorders on
Patrick as there were concerns of the factor 5 in addition to other clotting
disorders that could wipe him out completely (like a double whammy) and cause
some deeper issues later with bleeding and even within the liver and portal
hypertension.
The
liver doctors felt pretty certain that his clot, that completely blocks the
portal vein (spleen to liver), had been there for many years ... this blood
doctor is a little more concerned that it had not been apparent in previous
ultrasounds and seemed to just turn up recently within the past few months on
the MRI. He is going to discuss this with radiology to see if it would be
something that could not have been seen on the ultrasound.
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