Patrick's portal hypertension is listed as a "rare disease" by the Office of Rare Diseases (ORD) of the National Institutes of Health (NIH). This means that Portal hypertension, or a subtype of Portal hypertension, affects less than 200,000 people in the US population. While liver disease is rare in children, portal hypertension is even less common.
https://www.facebook.com/RareDiseaseDay.US
Here are some useful links:
Rare Disease Day
http://www.rarediseaseday.org/
Global Genes (Allies in Rare Diseases)
http://globalgenes.org/world-rare-disease-day/
Office of Rare Disease Research (through the National Institute of Health)
http://rarediseases.info.nih.gov/
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