Patrick was presented to the board and the GI team had some theories....congenital hepatic fibrosis which would cause the enlarged spleen. They wanted to push forward with a liver biopsy (October 16, 2013).
Although this would explain the platelets and enlarged spleen it is not a reason for the fevers, diarrhea, and low weight gain.
email 11/4/13 The results came back normal for congenital hepatic fibrosis. The GI doctor was shocked but did confirm that Patrick does have portal hypertension/ portal vein thrombosis.
When we were in the hospital we did talk to the radiologist
(before the biopsy was done) and he had told us that the chances of finding
things can sometimes be hard as they are only taking a sliver from one section
of the liver...oftentimes they will go in again and try another area. The radiologists have stated they are 100% sure that there is something wrong with Patrick's blood vessels and 90% sure that what is going on is related to his liver.
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